Resources

I’ve gathered together some resources , which I thought might be useful to individuals who are caring for someone with special needs. This is not a complete list of all available resources, nor have I had personal experience with many of these groups. I have included groups that fit into the general special needs category. If you see an organization that should be on the list and is not, please send it to me at info@alifeputonhold.com. I am not responsible for any errors phone number changes, emails or if the organization has closed its doors.

A

ARCH National Respite Coalition (NRC)
4016 Oxford St.
Annandale, VA 22003
Tel: 703-256-9578
jbkagan@verizon.net
archrespite.org

Art of Autism, The
P.O. Box 630
Carpinteria, CA 93013
theartofautism@gmail.com
the-art-of-autism.com

Attention Deficit Disorder Association
P.O. Box 7557
Wilmington, DE 19803-9997
Tel/Fax: (800) 939-1019
info@add.org
www.add.org

B
Brain Injury Association of America
1608 Spring Hill Rd., Ste. 110
Vienna, VA 22182
Tel: 703-761-0750
Fax: 703-761-0755
Toll-Free: 800-444-6443
www.biausa.org

C

Children and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD)
4601 President’s Drive, Ste. 300
Lanham, MD 20706
800-233-4050
www.chadd.org

Children’s Hemiplegia and Stroke Assoc. (CHASA)
4101 West Green Oaks Blvd., Ste. 305, #149
Arlington, TX 76016
Tel: 817-492-4325
www.chasa.org

D

E

F

G
Genetic and Rare Diseases (GARD) Information Center
P.O. Box 8126
Gaithersburg, MD 20898-8126
Toll-Free: 888-205-2311
rarediseases.info.nih.gov/GARD/

H

I

J

K

L
Learning Disabilities Association of America
4156 Library Rd.
Pittsburgh, PA 15234-1349
Tel: 412-341-1515
Fax: 412-344-0224
ldaamerica.org

M
Moyamoya.com
admin@moyamoya.com
www.moyamoya.com

N

National Institute of Mental Health
Tel: 301-443-4513
Toll-Free: 866-615-6464
TTY: 301-443-8431
TTY Toll-Free: 866-415-8051
Fax: 301-443-4279
nimhinfo@nih.gov
www.nimh.nih.gov

National Association of Parents with Children in Special Education (NAPCSE)
3642 Sunnydale Dr.
Chandler Heights, AZ 85142
Toll-Free: 800-754-4421
Fax: 800-424-0371
contact@napcse.org
www.napcse.org

National Institute of Neurological Disorders and Stroke
NIH Neurological Institute
P.O. Box 5801
Bethesda, MD 20824
Tel: 301-496-5751
Toll-Free: 800-352-9424
www.ninds.nih.gov

National Organization for Rare Disorders (NORD)
55 Kenosia Ave.
Danbury, CT 06810
Tel: 203-744-0100
Toll-Free: 800-999-NORD (6673)
Fax: 203-798-2291
www.rarediseases.org

National Stroke Association
9707 East Easter Ln., Ste. B
Centennial, CO 80112-3747
Toll-Free: 800-STROKES (787-6537)
Fax: 303-649-1328
info@stroke.org
www.stroke.org

O
Organization of Special Needs Families
OSF Learning Center
10823 Willowbrook Way
Cupertino, CA 95014
Phone: 408-996-0850
Fax: 408-996-0850
osf.office@gmail.com
www.osfamilies.org

P

Parent to Parent USA
2030 M Street N.W., Ste. 350
Washington, DC 20036
memberinfo@p2pusa.org
p2pusa.org

PACER Center (Parent Advocacy Center for Educational Rights)
PACER Center, Inc.
8161 Normandale Blvd.
Bloomington, MN 55437
Tel: 952-838-9000
Toll-Free: 888-248-0822
Fax: 952-838-0199
www.pacer.org

PHD in Special Education
(Website with online resources)
http://phdinspecialeducation.com/special-needs/

S

Special Needs Network Inc.
4401 Crenshaw Blvd.
Ste. 215
Los Angeles, CA 90043
Tel: 323-291-7100
Fax: 323-291-7104
http://snnla.org

T

Team of Advocates for Special Kids (TASK)
100 W. Cerritos Ave.
Anaheim, CA 92805
Tel: 866-828-8275 or 714-533-8275
Fax: 714-533-2533
task@taskca.org
www.taskca.org

U

UCSF Benioff Children’s Hospital
Stroke and Cerebrovascular Center
400 Parnassus Ave., Eighth Floor
San Francisco, CA 94143
Phone: 415-353-3682
Fax: 415-353-2400
www.ucsfbenioffchildrens.org

V

W

X

Y
Z

Zero to Three: National Center for
Infants, Toddlers, and Families
1255 23rd St. N.W., Ste. 350
Washington, DC 20037
Tel: 202-638-1144
Fax: 202-638-0851
www.zerotothree.org

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